He had a great night last night, something closer to his old schedule at home. Slept eight solid hours, up for one and back down for the two more we’re so thankful for every morning! He was quite sedate during the day. Happy, but quiet and dozing lots. He only really talked a few times for Grandpa Chick but doled out the smiles like monopoly money to anyone who'd look. I like to think his little body is taking the down time it needs to heal against the onslaught of such powerful drugs. I spent my day cuddling, nuzzling and just soaking him in. While I recognise that the missing need for independence on his part is a serious sign of what’s going on inside him, the mother in me just can’t help cherishing the stolen moments.
Every fibre in me is just vibrating with the hope and need for this miserable invasion on his little body to respond to the ugly drugs. Up until treatment started, I was stalled on simply processing the knowledge that there was something attacking my child and that my life was going to completely change NOW. I can feel my focus shifting to him instead of swirling around myself. The part of me that pushes through life’s challenges is once again hardening, turning to granite. I want to infuse this little person with the strength and stubborn resolve I feel solidifying in my core.
Elbows up, people. We’re coming through!
Oh yea, Hailie is back! The fight must commence to be able to win it. You are there for him which is the best thing you can do for Kaleb.
ReplyDeleteLove,
Garoleen
You are just an amazing person, and I don't even know you! But hopefully I will be able to attend one of the events posted to help Kaleb and get a chance to meet you there. Hilary has nothing but good to say about your family. I'm watching my little munchkin sleep after a night with a bad cold and all I can think of is the strength you have in the face of such a major life changing challenge. If anything reading this has again made me realize the there are alot of "little things" in life that just don't matter. Bless you and your family and you are always in my thoughts and prayers.
ReplyDeleteYou three are so strong when you stand together. Through these trying times know that we are all here to help support and encourage you all. I can't imagine what you are going through but know that no matter what you are not forgotten.
ReplyDeleteYou are always in our hearts, thoughts and prayers.
I have shared your story with my family and friends, you have many people thinking of you when they wake in the morning as well as when they lay there heads down at night.
Devon wants his little cousin to come and play again soon, and Megan says a prayer for him each night. We have shared the news with them, only in words that they can understand. However, I too don't totally understand. No one should ever have to go through something like this especailly not a 5 month old.
Kaleb, keep fighting. After this, as you grow into the handsome man we all know you will be, you will have many obsticals in life that wont see so tough...you are a true inspiration.
Hailie, you are so strong. A mom should never have to go through something like this, this is your baby. I am at awe for words when I read your updates, you are the true "mother of the year".
Patrick, keep your head up, and shoulders ready for a tear or two. It takes team work and I know you are a fighter, that is where Kaleb is getting it from...the three of you together can fight anything. Look out world!
We are always here for anything you need...just call or drop us a line!
Love C,J,D,M Emms