We're In.

Back at it today. Bit of a bungle getting us admitted that had the little man and I floating for more than an hour, but we survived and are all snuggled in.

Kaleb is not exaclty comfortable with the sudden restriction. He's been mapping out the floor plan of our house for the last week and is now behind bars. He is, however, getting very good at shuffling laps around the perimeter of the crib, fishing along the bars and gnawing on the top rail. We've already had to Kaleb-proof anything within (his) reach outside the crib. Boredom makes him latch on to the smallest opportunity for entertainment like a leach. He's fast, direct and very sure whatever it is belongs in his hands, and subsequently, his mouth.

There has got to be something in the air, lately. On three major fronts we've had unprecendented difficulty with big so-called professional forces on putting into effect very small and every-day things. So much nonsense is causing some serious stress. Why must one be a complete a$$hole to get what should have been done in the first place, done?! And I mean, we have tried to be pleasant with all three facets for weeks.

I'm sure I can't name names without some serious repercussions, and I know what dealing with the government is like first-hand (used to work in my own branch) but it is UNREAL when a time frame of 2 weeks is given for an every-day proccess that is an agent's entire job description, and over 3 months passes with numerous phone calls to said agent and supervisors and STILL there is no result.

Never mind the monster coporation that sold us a defective brand new product and failed after numerous communications over the span of a month to remedy the issue, to the point that we had to get the parts and repair the unit ourselves. Again, we had even spoken to some corporate big-wig. ..???!

And then there's the very alien world we find ourselves submersed in on Kaleb's behalf. We are grateful for the results they are rendering with their efforts. The ways in which they come to the final answer do often leave our heads spinning. Protocols and individual tendencies of every person working on his behalf are extremely trying to our tiny lay-person brains and psyches. 99% of the staff really is spectacular, but it is truly amazing how one rude nasty apple can colour your entire world there a whole new ugly. There's absolutely NO reason or room for a professional to yell at or bully anyone on this floor (colleagues or caregivers). This entire floor's heartbeat is children in very shattering struggles and their very fragile caregivers. There also seems to be no room for value of good ol' fashion sleep to heal a body. There is disruption to Kaleb's sleep cycle that seems (from our ignorant perspective) completely avoidable, if only someone would ask us his routine before mapping out a treatment and try to incorporate things a little smoother... we could double-hit this thing from both fronts. And we're not talking a couple of hours missed, he literally misses out on half a day and half a night. That just has to be working against him. Thank goodness chemo is only 6 days this round.

Sure am thankful for the opportunity to vent. Sometimes just getting it all out helps heaps.